Share the Care
Training provided to your own group of friends, neighbors and relatives to help you create a “caregiver family” so that every job will be done and no one person will have to do too much.
Videos and books specific to each phase of the disease are provided.
Training is provided to home health agencies and medical professionals.
Equipment Loan Program
Manual and power wheel chairs are loaned free of charge until a patient receives his or her own. Commodes, shower benches, toilet risers, four-wheel walkers, canes, Hoyer lifts are loaned as well.
Support groups are open to pALS, cALS (caregiver of ALS pALS), and family members. The session is facilitated by ALS staff in Las Vegas and ALS staff and Rita Biasi clinical social worker for Infinity Hospice in Reno, Nevada. Please call the ALS of Nevada office for more information, 702-777-0500.
Staff meets with the pALS and family to discuss life-style changes necessitated by the disease offering suggestions for home adaptations. Staff also provides help with insurance forms, Social Security, Medicare paperwork, and coordination of doctor appointments – ALS of Nevada’s staff serve as advocates for ALS pALS.
Aids for Daily Living (ADL) Program
ALS of Nevada offers a loan closet of ergonomic aids, including eating utensils, scoop plates, long handled brushes, combs sponges, button fasteners, to assist pALS in compensating for the loss of basic functions. The idea is to keep the pALS as independent for as long as possible.
Many technological devices that allow patients to better communicate when the ability of speech has been lost are loaned free. Dynavox, alphabet boards and Tobii are among a few of the communication devices for loan.
ALS of Nevada Monthly Multi-Disciplinary Clinics
One monthly ALS multidisciplinary clinic is held in two different locations in Las Vegas with a neurologist, respiratory therapist, occupational therapist, speech language pathologist, dietitian, social worker, and a representative from ALS of Nevada at each clinic. All Nevada pALS are eligible to attend and are scheduled every 3-6 months depending on their rate of progression.
ALS of Nevada is a pALS -dedicated independent, non-profit 501(c) (3) organization committed to improving the lives of people afflicted with ALS (amyotrophic lateral sclerosis, also known as Lou Gehrig’s disease), as well as serving their families and caregivers, throughout Nevada. Founded in 1998, the organization’s board of directors and executive director raise funds to support pALS services, pALS and caregiver programs and education. All monies raised are used solely for pALS and cALS living in the state of Nevada.
ALS of Nevada’s primary goals are to:
- Help the Nevada ALS pALS and family/caregivers live as full and normal a life as possible.
- Aid pALS through the loan of equipment or by other means.
- Serve as a liaison, linking the ALS pALS to available resources and information.
- Educate and inform the public as to the nature of ALS.
- Encourage scientific research for the prevention, alleviation, care, treatment and cure of ALS, as well as increase awareness of ALS at all levels of government in an effort to expand government support for research and initiate programs to provide accessible and affordable treatments and care.