ALS of Nevada

Volunteers celebrate another successful Walk n’ Roll/5K Run event.

admin — Sun, 18 Mar 2012 23:47:12 +0000

As you can see from this photo, volunteering can be fun. Please consider donating your time and helping us with one of our fundraisers.

Or consider becoming a fundraiser yourself by putting on a third-party event.

Please contact:
ALS of Nevada
888 West Bonneville
Las Vegas, Nevada 89106

Our telephone number is 702-777-0500, and our fax number is 702-777-0503.

You can also reach us via email at admin@alsofnevada.org

Joining together to raise funds for ALS of Nevada

admin — Sun, 18 Mar 2012 23:46:26 +0000

The annual Walk n’ Roll and 5K Run for ALS of Nevada helps fund services for ALS patients and their families. Walk n’ Roll/5K takes place in beautiful Police Memorial Park.

Participants can create their own Team and reach out to more people to increase their donation to ALS.

Each participant (from 5 years and up) is required to donate a minimum of $25 to participate in either the Walk n’ Roll or the 5K. Awards will be given in all age groups for the 5K, as well as to participants who raise the most money for both events. The event is open to the public.

Anyone interested in participating to support ALS of Nevada’s mission – from babies to seniors – are welcome. Event is wheelchair and stroller accessible.

Saturday, October 13, 2012
Registration for run at event:
6:00 through 8:00 am

Registration for walk at event:
6:00 am through 8:00 am

Events start:
8:00 am Run starts
8:15 am Walk n’ Roll starts

Balloon release at end of event in Memorial Tree Grove.

Police Memorial Park
3250 Metro Academy Way, Las Vegas, NV 89129

Team Dorinson suits up to fight ALS.

admin — Sun, 18 Mar 2012 23:45:43 +0000

Rob Dorinson (second from right) is afflicted with ALS. He and his family and friends helped make the 2011 Walk n’ Roll/5K Run for ALS of Nevada so successful. One of his goals is to make sure that ALS of Nevada continues to raise enough money to become self-sustaining. He knows how important ALS of Nevada’s services are to patients, caregivers and families.

Given the progressive nature of the disease and the differences in how it attacks each patient, he understands just how important the free clinics are in Las Vegas and Reno. Whether the patient is affected in their limbs or their speech, the multi-disciplinary medical team can help treat them.

TWO TIPS FOR THOSE AFFLICTED WITH ALS

If you live in Nevada and are suffering with ALS, please call 702-777-0500 or email admin@alsofnevada.org to understand all the services that ALS of Nevada can provide you.

Also, there’s a wonderful website, http://www.patientslikeme.com/als/community that can provide insight into the disease through other patients that afflicted with ALS.

Form a team for ALS.

admin — Sun, 18 Mar 2012 23:45:03 +0000

This group walked in memory of Dennis Coogle. Each year we have many teams participate in our Walk n’ Roll events. It’s a great way to remember someone and to help others who are now afflicted with ALS. Join us – both events are held at beautiful sites. Registration available online – Fundraising and Events pages.

This year’s Walk n’ Roll events:

RENO Walk n’ Roll on September 15, 2012
Sparks Marina

LAS VEGAS Walk n’ Roll/5K Run on October 13, 2012
Police Memorial Park

Two of the medical team determine nutritional plan for clinic patient

admin — Sun, 18 Mar 2012 23:44:22 +0000

The free clinics held each month in Reno and Las Vegas provide patients and caregivers with a multi-disciplinary medical team, including a neurologist, respiratory therapist, occupational therapist, speech language pathologist, dietitian, social worker, and a representative from ALS of Nevada. All Nevada patients are eligible to attend and are scheduled every 3-6 months depending on their rate of progression.

The entire team is available during the clinic and is able to solve many treatment problems as the disease progresses and the patient’s needs change.

Dietician and speech pathologist team up on patient’s care

admin — Sun, 18 Mar 2012 23:42:41 +0000

Sometimes it takes several of the medical team members to come up with a new plan for a patient. Here the dietician and speech pathologist work together to determine next steps for an ALS patient with nutritional and language issues.

NUTRITION SOLUTIONS
ALS of Nevada offers a loan closet of ergonomic aids, including eating utensils, speech enhancers, button fasteners, long straws, and an automatic feeding station to assist patients in compensating for the loss of basic functions due to the disease’s progression.

COMMUNICATION SOLUTIONS
Many technological devices that allow patients to better communicate when the ability of speech has been lost are loaned free. Dynavox, alphabet boards and Tobii are among a few of the communication devices for loan.

Two of the medical team discuss respiratory therapy.

admin — Sun, 18 Mar 2012 23:41:43 +0000

During the monthly clinic, the medical team has an opportunity to discuss changes to individual patients’ care. In this photo the sales representative for The Vest (a machine that ‘shakes up’ the lungs to clear them out) is speaking with the respiratory therapist about its potential uses.

Free monthly clinics are held in Reno and Las Vegas with a neurologist, respiratory therapist, occupational therapist, speech language pathologist, dietitian, social worker, and a representative from ALS of Nevada at the clinic. All Nevada patients are eligible to attend and are scheduled every 3-6 months depending on their rate of progression.

Please either call 702-777-0500 or email admin@alsofnevada.org for more information about the clinics.

Free monthly ALS clinic available in both Las Vegas and Reno

admin — Sun, 18 Mar 2012 23:40:53 +0000

ALS of Nevada free monthly clinics are held in Reno and Las Vegas with multi-disciplinary medical team available to all patients and caregivers. Each team consists of a neurologist, respiratory therapist, occupational therapist, speech language pathologist, dietitian, social worker, and a representative from ALS of Nevada at the clinic. All Nevada patients are eligible to attend and are scheduled every 3-6 months depending on their rate of progression.

Walking in honor of our uncle.

admin — Sun, 18 Mar 2012 18:39:56 +0000

These children are walking in honor of their uncle who is afflicted with ALS. They know what a tough disease it is and how much ALS of Nevada can help. Please join us at either the Walk n’ Roll/5k Run in Las Vegas or the Walk n’ Roll in Reno.

ALS (amyotrophic lateral sclerosis, also known as Lou Gehrig’s disease) of Nevada is an independent, non-profit 501(c) (3) organization striving to improve the lives of those living with and fighting ALS throughout Nevada, one patient at a time. The organization started in 1998. The board of directors and executive director raise funds through events, corporate donations and sponsorships, grants and the generosity of individuals.

ALS of Nevada’s primary goals are to:

Help the Nevada ALS patient and family/caregivers live as full and normal a life as possible.
Aid patients through the loan of equipment or by other means.
Serve as a liaison, linking the ALS patient to available resources and information.
Educate and inform the general public as to the nature of ALS.

Balloons rise as we remember ALS patients who have left us.

admin — Sun, 18 Mar 2012 18:22:33 +0000

Every year we read the names of Nevada ALS patients who have left us and then release balloons into the sky in their memory at the Walk n’ Roll in Las Vegas.

Patients like Maureen (Wendy) Rockenfeller, 55, of Boulder City, Nevada, who passed peacefully from this life on February 8, 2012. Wendy is survived by her adoring husband, Uwe; her cherished children, Kirsten and Justin; brother, sisters and several nieces and nephews.

Amyotrophic Lateral Sclerosis (ALS), commonly known as “Lou Gehrig’s disease,” is a progressive invariably fatal neuromuscular disease that attacks the nerve cells and pathways in the brain and spinal cord. With all voluntary muscle action affected, patients in the later stages are totally paralyzed, unable to speak, swallow, or breathe. As the disease progresses the simplest movements such as walking, speaking, eating and traveling quickly become nearly impossible. Every 96 minutes someone is diagnosed with ALS. Current estimates are that between 20,000 and 30,000 people are living with ALS in the U.S. Difficult to diagnose, there is no known cure.