Sep 15

[ketoneburning why fattening up is so important with ALS]

The folks over at ALS were kind enough to let me do a personal post of my own. My mother passed from ALS and the one thing that I wish, besides having her back, would have been to have thought ahead of time about the amount of fat she actually lacked when she was diagnosed. You see my mother was always “watching her weight.” Normally, this is a very good thing, but when ALS strikes being fatter is healthier!

While she could still swallow (eat normally), she should have been eating ice cream, cookies, any and all fat-inducing foods by the handfuls (and we should have made her!!).

The reason is very simple. This horrible disease is going to attack every part of a person’s body. It goes for all the fat reserves first, and then… well there are only muscles and organs left.

The more obese even a person is – while they are able to pack the weight on – the better when it comes to “fighting” ALS!

Having been on fat-burning diets in the past, I KNOW the smell of ketones (fat) burning. It gives off a distinct odor. And as her ALS progressed, the smell was overwhelming. However, by that time it was too late. She had too much trouble swallowing, had no appetite at all, and just couldn’t do it. She just did not have the energy or ability to do the one thing she needed desperately to do… eat!

So PLEASE if you have a loved one diagnosed with ALS (Lou Gehrigh’s disease) and while they are able, MAKE THEM eat, and eat, and eat. The more fat they have stored to burn the better!

This is a horrible disease, and too often we – the caregivers – feel alone, exhausted and totally helpless. Those with ALS, my heart goes out to you. PLEASE follow this advice – eat while you can – fattening rich chocolate brownies with mounts of ice cream, whip cream and nuts. Whatever you can… just EAT. Stop thinking “healthy” and start thinking “I need to pack on the pounds!”

Thanks for reading ( in loving memory to my mother, Maureen Grone).

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Thanks again to the folks at ALS of Nevada for letting me post. If YOU have words of wisdom, encouragement, strategies, whatever, feel absolutely free to send your write ups in using the “Have a Question?” contact link on your right. We will happily post your information!

Aug 21

Thankfully, the Department of Veteran Affairs has taken the appropriate action. They now list ALS as a disease entitled to “presumptive service connection.”

This means that if a service member is diagnosed with ALS his or her condition will be presumed to have occurred during or been aggravated by military service and as such be entitled to service connection and full benefits.

An overview of benefits available to veterans, survivors and dependents is available from the VA is included on our website.

Visit our ALS Veterans Information page for benefits and links out to the resources you need.

Aug 14

[alsnewsandsupport]

We recently came across a website for staying on top of ALS news and recent advancements.

Topix has a health section devoted entirely to information about ALS (also known as Lou Gehrig’s disease). One of their readers has made a claim in their forum that most likely will astound you.

We here at ALS of Nevada have no idea of the validity of such a claim, and encourage you to draw your own conclusions. However, that said, head over to Diagnosed in August 07, Symptom free by January. The input was posted on May 3, 2008.

It also appears to have potential if you are looking for an online support group.

Jul 25

[MedicalNewsToday]

An incurable, paralyzing disease in humans is now genetically linked to a similar disease in dogs. Researchers from the University of Missouri and the Broad Institute have found that the genetic mutation responsible for degenerative myelopathy (DM) in dogs is the same mutation that causes amyotrophic lateral sclerosis (ALS), the human disease also known as Lou Gehrig’s Disease. As a result of the discovery, click here for the rest of the article

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