http://www.alsofnevada.org/blog Providing a resource for the voices of ALS caregivers and victims Sat, 22 May 2010 23:21:42 +0000 http://backend.userland.com/rss092 en [AlsofNevada Crisis] We've covered on the front page of ALS of Nevada, our serious potential inability to remain an active nonprofit on behalf of Lou Gehrig's disease victims and their families. We are desperately trying to raise the money needed to just "remain in business"! To that effect, for those living in ... http://www.alsofnevada.org/blog/2010/05/drawing-attention-to-als-crisis/ Approximately 10% of those affilicted with ALS inherited this devastating disease. While the "family connection" is low, it does exist. Recently ALSA.org announced from their "In The News" section, a clinical trial underway. This clinical trial is aimed at "an inherited, aggressive form of Lou Gehrig's disease also know as ... http://www.alsofnevada.org/blog/2010/03/als-clinical-drug-treatment-in-the-news/ [alsreliefmucus] First, thanks for being so patient when it comes to updating a new post for the blog. We were extremely busy moving to the new Lou Ruvo Brain Center, as well as planning for all our upcoming 2010 fundraising events. However, we would like to bring to your attention a website ... http://www.alsofnevada.org/blog/2010/02/mucus-and-als-relief/ [alsofnevada-events] For those of you unaware of the fact that there is an entire ALS information website "out front," we didn't want you to miss out on the newest fund raising events planned for the new Year! You'll want to head to our Calender of Events, but here's just "taste" of things ... http://www.alsofnevada.org/blog/2010/01/exciting-events-planned-for-2010/ [grants/donations/als] Our apologies for not posting as often as we would have liked this past year, but the move to the new Center (see post below this one), and keeping in touch with patients and caregivers, and the clinic and fund raising consume lots of our time. BUT... and this should have ... http://www.alsofnevada.org/blog/2009/12/thanks-to-walmart-and-so-many-more/ [louruvobraincenter] We have begun our new move to the brand spanking new Lou Ruvo Center on Bonneville in Las Vegas. While we're not 100% up and running, the move is going smoothly. It's just we have a lot of equipment, files, etc., to get sorted. In our old offices (and we do ... http://www.alsofnevada.org/blog/2009/10/lou-ruvo-center-our-new-home/ [ketoneburning why fattening up is so important with ALS] The folks over at ALS were kind enough to let me do a personal post of my own. My mother passed from ALS and the one thing that I wish, besides having her back, would have been to have thought ahead of ... http://www.alsofnevada.org/blog/2009/09/pack-on-the-fat-please-with-als-while-you-can/ Thankfully, the Department of Veteran Affairs has taken the appropriate action. They now list ALS as a disease entitled to "presumptive service connection." This means that if a service member is diagnosed with ALS his or her condition will be presumed to have occurred during or been aggravated by military service ... http://www.alsofnevada.org/blog/2009/08/als-and-veteran-benefits/ [alsnewsandsupport] We recently came across a website for staying on top of ALS news and recent advancements. Topix has a health section devoted entirely to information about ALS (also known as Lou Gehrig's disease). One of their readers has made a claim in their forum that most likely will astound you. We here ... http://www.alsofnevada.org/blog/2009/08/als-news-and-potential-online-support-group/ [MedicalNewsToday] An incurable, paralyzing disease in humans is now genetically linked to a similar disease in dogs. Researchers from the University of Missouri and the Broad Institute have found that the genetic mutation responsible for degenerative myelopathy (DM) in dogs is the same mutation that causes amyotrophic lateral sclerosis (ALS), the ... http://www.alsofnevada.org/blog/2009/07/als-and-dogs/