Comments for ALS of Nevada http://www.alsofnevada.org/blog Providing a resource for the voices of ALS caregivers and victims Tue, 16 Feb 2010 22:40:30 -0600 http://wordpress.org/?v=2.8.4 hourly 1 Comment on Pack On The Fat PLEASE With ALS While You Can by admin http://www.alsofnevada.org/blog/2009/09/pack-on-the-fat-please-with-als-while-you-can/comment-page-1/#comment-64 admin Tue, 16 Feb 2010 22:40:30 +0000 http://www.alsofnevada.org/blog/?p=86#comment-64 Hi Chris! First our apologies for not answering this sooner, with just two of us covering a vast state, staying on top of things can get challenging :) The odor of fat burning is quite distinct. It's not a garlic smell at all. There's really nothing to compare it to unfortunately. You would know, it's that distinctive. Hi Chris! First our apologies for not answering this sooner, with just two of us covering a vast state, staying on top of things can get challenging :)

The odor of fat burning is quite distinct. It’s not a garlic smell at all. There’s really nothing to compare it to unfortunately. You would know, it’s that distinctive.

]]> Comment on Pack On The Fat PLEASE With ALS While You Can by Chris Colon http://www.alsofnevada.org/blog/2009/09/pack-on-the-fat-please-with-als-while-you-can/comment-page-1/#comment-58 Chris Colon Mon, 25 Jan 2010 21:12:37 +0000 http://www.alsofnevada.org/blog/?p=86#comment-58 As a caregiver, I would be interested in hearing a description of the "odor of fat burning" you speak of. My mother will sometimes get this random garlic-like smell. I haven't been able to place the source or figure out what it is and why it's happening. As a caregiver, I would be interested in hearing a description of the “odor of fat burning” you speak of.

My mother will sometimes get this random garlic-like smell. I haven’t been able to place the source or figure out what it is and why it’s happening.

]]> Comment on Twitching Does It Really Mean ALS? by Steven J Daigle http://www.alsofnevada.org/blog/2009/03/twitching-does-it-really-mean-als/comment-page-1/#comment-57 Steven J Daigle Sat, 05 Dec 2009 23:52:59 +0000 http://www.alsofnevada.org/blog/?p=27#comment-57 I found your web-site to be very helpfull. I have been experiencing twiching and severe cramps in my calfs for about 8 months. I have seen two nero specialist and two nero surgeons. All say I have spinal stenosis. I cant get the ALS out of my head. I have had emg, head scan back scans and every blood test possible. The twitching is 24/7 and the muscles jump all over the calf at the same time. Ever since this started it was in both legs at the same time. I amd 48 yrs old good family life that I am tearing apart. My friends think im a not beacuse all I think of is ALS. I cant get the symtoms to die down. The docs, look at me like im crazy. I keep thinking I been flagged by the doctors but Im no better. I dont and never had any weakness; just the severe cramping the minute I stand along with the constant twitching. Lost and so afried. Steve I found your web-site to be very helpfull. I have been experiencing twiching and severe cramps in my calfs for about 8 months. I have seen two nero specialist and two nero surgeons. All say I have spinal stenosis. I cant get the ALS out of my head. I have had emg, head scan back scans and every blood test possible. The twitching is 24/7 and the muscles jump all over the calf at the same time. Ever since this started it was in both legs at the same time. I amd 48 yrs old good family life that I am tearing apart. My friends think im a not beacuse all I think of is ALS. I cant get the symtoms to die down. The docs, look at me like im crazy. I keep thinking I been flagged by the doctors but Im no better. I dont and never had any weakness; just the severe cramping the minute I stand along with the constant twitching. Lost and so afried.

Steve

]]> Comment on Lou Ruvo Center Our New Home by Vera http://www.alsofnevada.org/blog/2009/10/lou-ruvo-center-our-new-home/comment-page-1/#comment-56 Vera Sat, 21 Nov 2009 07:57:17 +0000 http://www.alsofnevada.org/blog/?p=87#comment-56 That's a very interesting looking building you got there That’s a very interesting looking building you got there

]]> Comment on Lou Ruvo Center Our New Home by Paul Baines http://www.alsofnevada.org/blog/2009/10/lou-ruvo-center-our-new-home/comment-page-1/#comment-55 Paul Baines Mon, 09 Nov 2009 13:44:58 +0000 http://www.alsofnevada.org/blog/?p=87#comment-55 Is this a Frank Gehry? At least if there was an earthquake no one would noticed the difference afterwards. Is this a Frank Gehry? At least if there was an earthquake no one would noticed the difference afterwards.

]]> Comment on Pack On The Fat PLEASE With ALS While You Can by Azim http://www.alsofnevada.org/blog/2009/09/pack-on-the-fat-please-with-als-while-you-can/comment-page-1/#comment-54 Azim Sun, 11 Oct 2009 17:27:29 +0000 http://www.alsofnevada.org/blog/?p=86#comment-54 tThank you for your advice. tThank you for your advice.

]]> Comment on ALS and Dogs? by gagay http://www.alsofnevada.org/blog/2009/07/als-and-dogs/comment-page-1/#comment-53 gagay Mon, 05 Oct 2009 10:09:46 +0000 http://www.alsofnevada.org/blog/?p=67#comment-53 great info here! i am having medical blog, though it's a blog, i do also post factual things medically..mind, anyway, for exlinks? if so, should u add my two blogs, ping me with your blog so i could add u then. gracias! <a href="http://walkingnewspaper.blogspot.com/">gagay</a> <a href="http://pinoymedicaldoctor.blogspot.com/">gagay,MD</a> great info here! i am having medical blog, though it’s a blog, i do also post factual things medically..mind, anyway, for exlinks? if so, should u add my two blogs, ping me with your blog so i could add u then. gracias!

gagay
gagay,MD

]]> Comment on Pack On The Fat PLEASE With ALS While You Can by Barbara http://www.alsofnevada.org/blog/2009/09/pack-on-the-fat-please-with-als-while-you-can/comment-page-1/#comment-52 Barbara Tue, 29 Sep 2009 02:24:18 +0000 http://www.alsofnevada.org/blog/?p=86#comment-52 A very touching post. Hopefully, it is advice that will make a good difference for someone fighting this terrible disease! A very touching post. Hopefully, it is advice that will make a good difference for someone fighting this terrible disease!

]]> Comment on Pack On The Fat PLEASE With ALS While You Can by David Deitch http://www.alsofnevada.org/blog/2009/09/pack-on-the-fat-please-with-als-while-you-can/comment-page-1/#comment-51 David Deitch Wed, 16 Sep 2009 15:59:23 +0000 http://www.alsofnevada.org/blog/?p=86#comment-51 I agree 100% and am I trying to put weight/fat on, but it is not easy when my desire to eat has all but gone away. I would recommend Scandi Shakes, 600 calories with Whole Milk. I also use ice cream, frozen fruit and coconut oil to kick up even more, probably around 900 calories. I agree 100% and am I trying to put weight/fat on, but it is not easy when my desire to eat has all but gone away. I would recommend Scandi Shakes, 600 calories with Whole Milk. I also use ice cream, frozen fruit and coconut oil to kick up even more, probably around 900 calories.

]]> Comment on Twitching Does It Really Mean ALS? by mcdonalds coupons http://www.alsofnevada.org/blog/2009/03/twitching-does-it-really-mean-als/comment-page-1/#comment-26 mcdonalds coupons Mon, 14 Sep 2009 15:44:00 +0000 http://www.alsofnevada.org/blog/?p=27#comment-26 Thank you very much for this good blog post. Thank you very much for this good blog post.

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