Mar 30

Approximately 10% of those affilicted with ALS inherited this devastating disease. While the “family connection” is low, it does exist. Recently ALSA.org announced from their “In The News” section, a clinical trial underway. This clinical trial is aimed at “an inherited, aggressive form of Lou Gehrig’s disease also know as familial amyotrophic lateral sclerosis (ALS).”

Isis Pharmaceuticals, Inc., is in Phase 1 of their study. They are testing an “antisense drug designed to inhibit production of SOD1.” SOD1, or superoxide dismutase, may be the cause of approximately 20 percent of all familial ALS cases. To read the full writeup, please click here.

Also, we understand and fully appreciate these harsh economic times. However, your donation directly to ALS of Nevada will help us assist the victims and caregivers within our own state. All monies stay here in our state to help Nevada ALS victims.

ALS of Nevada is not affiliated with ALSA. We are a not-for-profit group covering a very large state. Donations of any amount are always appreciated!

Posted in ALS, ALS Information, ALS Research, ALS advancements, ALS of Nevada, Genetics, Lou Gehrig's Disease, public support | 1 Comment »
Aug 14

[alsnewsandsupport]

We recently came across a website for staying on top of ALS news and recent advancements.

Topix has a health section devoted entirely to information about ALS (also known as Lou Gehrig’s disease). One of their readers has made a claim in their forum that most likely will astound you.

We here at ALS of Nevada have no idea of the validity of such a claim, and encourage you to draw your own conclusions. However, that said, head over to Diagnosed in August 07, Symptom free by January. The input was posted on May 3, 2008.

It also appears to have potential if you are looking for an online support group.

Posted in ALS, ALS Information, ALS Research, ALS advancements, ALS of Nevada, Genetics, Lou Gehrig's Disease | No Comments »
Jul 25

[MedicalNewsToday]

An incurable, paralyzing disease in humans is now genetically linked to a similar disease in dogs. Researchers from the University of Missouri and the Broad Institute have found that the genetic mutation responsible for degenerative myelopathy (DM) in dogs is the same mutation that causes amyotrophic lateral sclerosis (ALS), the human disease also known as Lou Gehrig’s Disease. As a result of the discovery, click here for the rest of the article

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Posted in ALS, ALS Information, ALS Research, Genetics | 3 Comments »