ALS of Nevada

Approximately 10% of those affilicted with ALS inherited this devastating disease. While the “family connection” is low, it does exist. Recently ALSA.org announced from their “In The News” section, a clinical trial underway. This clinical trial is aimed at “an inherited, aggressive form of Lou Gehrig’s disease also know as familial amyotrophic lateral sclerosis (ALS).”

Isis Pharmaceuticals, Inc., is in Phase 1 of their study. They are testing an “antisense drug designed to inhibit production of SOD1.” SOD1, or superoxide dismutase, may be the cause of approximately 20 percent of all familial ALS cases. To read the full writeup, please click here.

Also, we understand and fully appreciate these harsh economic times. However, your donation directly to ALS of Nevada will help us assist the victims and caregivers within our own state. All monies stay here in our state to help Nevada ALS victims.

ALS of Nevada is not affiliated with ALSA. We are a not-for-profit group covering a very large state. Donations of any amount are always appreciated!

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Our apologies for not posting as often as we would have liked this past year, but the move to the new Center (see post below this one), and keeping in touch with patients and caregivers, and the clinic and fund raising consume lots of our time.

BUT… and this should have been announced last month, we have wonderful news!

We received the news that ALS of Nevada will be receiving a $25,000 grant from Wal-Mart that we applied for in August. This grant is restricted to our clinics and the buying and repairs of equipment for our patients statewide.

So with the new move complete, wonderful donations coming in through individuals, families, small and large businesses, we’re ready to hit 2010 with everything we’ve got!

We’d prefer, actually, to go out of business! Finding a cure is the miracle we all pray for! This Season, please don’t forget about us here in Nevada. You’ll find our donation information off there to your right.

Happy Holidays to All!

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We have begun our new move to the brand spanking new Lou Ruvo Center on Bonneville in Las Vegas. While we’re not 100% up and running, the move is going smoothly. It’s just we have a lot of equipment, files, etc., to get sorted.

In our old offices (and we do mean “old”) there was a bit of space. Cubicles now make up our wonderful space in this fantastic facility.

Here’s a photo of what the building looked like in September 2009. As soon as we’re able, we’ll update everyone on it’s current look (if you haven’t already traveled by to take a look for yourself).

Lou Ruvo Brain Institute Las Vegas Sept 2009

(Photo courtesy of Tom Dwyer)