Comments on: Twitching Does It Really Mean ALS? http://www.alsofnevada.org/blog/2009/03/twitching-does-it-really-mean-als/ Providing a resource for the voices of ALS caregivers and victims Sun, 02 May 2010 01:45:08 -0500 http://wordpress.org/?v=2.8.4 hourly 1 By: Tom http://www.alsofnevada.org/blog/2009/03/twitching-does-it-really-mean-als/comment-page-1/#comment-73 Tom Thu, 18 Mar 2010 17:42:02 +0000 http://www.alsofnevada.org/blog/?p=27#comment-73 Hello all , I am a 34 your old, who has had twitching all over my body for five weeks now. I saw a nuerologist after two weeks of the twitching, The neuro had an MRI completed on my neck which revealed a herniated disk and mild arthritis. The nuero also did an emg which came back negative. The Neuro said no ALS. That was two weeks ago, no im feeling pains and what i beleive to be weakness in my right leg. could the neuro be wrong.....very scared. does someone have an answer for this? Hello all , I am a 34 your old, who has had twitching all over my body for five weeks now. I saw a nuerologist after two weeks of the twitching, The neuro had an MRI completed on my neck which revealed a herniated disk and mild arthritis. The nuero also did an emg which came back negative. The Neuro said no ALS. That was two weeks ago, no im feeling pains and what i beleive to be weakness in my right leg. could the neuro be wrong…..very scared. does someone have an answer for this?

]]> By: Steven J Daigle http://www.alsofnevada.org/blog/2009/03/twitching-does-it-really-mean-als/comment-page-1/#comment-57 Steven J Daigle Sat, 05 Dec 2009 23:52:59 +0000 http://www.alsofnevada.org/blog/?p=27#comment-57 I found your web-site to be very helpfull. I have been experiencing twiching and severe cramps in my calfs for about 8 months. I have seen two nero specialist and two nero surgeons. All say I have spinal stenosis. I cant get the ALS out of my head. I have had emg, head scan back scans and every blood test possible. The twitching is 24/7 and the muscles jump all over the calf at the same time. Ever since this started it was in both legs at the same time. I amd 48 yrs old good family life that I am tearing apart. My friends think im a not beacuse all I think of is ALS. I cant get the symtoms to die down. The docs, look at me like im crazy. I keep thinking I been flagged by the doctors but Im no better. I dont and never had any weakness; just the severe cramping the minute I stand along with the constant twitching. Lost and so afried. Steve I found your web-site to be very helpfull. I have been experiencing twiching and severe cramps in my calfs for about 8 months. I have seen two nero specialist and two nero surgeons. All say I have spinal stenosis. I cant get the ALS out of my head. I have had emg, head scan back scans and every blood test possible. The twitching is 24/7 and the muscles jump all over the calf at the same time. Ever since this started it was in both legs at the same time. I amd 48 yrs old good family life that I am tearing apart. My friends think im a not beacuse all I think of is ALS. I cant get the symtoms to die down. The docs, look at me like im crazy. I keep thinking I been flagged by the doctors but Im no better. I dont and never had any weakness; just the severe cramping the minute I stand along with the constant twitching. Lost and so afried.

Steve

]]> By: mcdonalds coupons http://www.alsofnevada.org/blog/2009/03/twitching-does-it-really-mean-als/comment-page-1/#comment-26 mcdonalds coupons Mon, 14 Sep 2009 15:44:00 +0000 http://www.alsofnevada.org/blog/?p=27#comment-26 Thank you very much for this good blog post. Thank you very much for this good blog post.

]]> By: corrin http://www.alsofnevada.org/blog/2009/03/twitching-does-it-really-mean-als/comment-page-1/#comment-25 corrin Tue, 21 Apr 2009 14:19:04 +0000 http://www.alsofnevada.org/blog/?p=27#comment-25 I did not know that twitching was a symptom. I did not know that twitching was a symptom.

]]> By: Susie Twasta, LPN http://www.alsofnevada.org/blog/2009/03/twitching-does-it-really-mean-als/comment-page-1/#comment-24 Susie Twasta, LPN Fri, 17 Apr 2009 17:55:39 +0000 http://www.alsofnevada.org/blog/?p=27#comment-24 ALS specific symptoms usually don't come and go. When you have the fatigue factor that comes with an ALS diagnosis patients do state that they often feel better on a day to day basis, but are never quite symptom free. The age of a patient and other underlying conditions may also play a significant role. ALS specific symptoms usually don’t come and go. When you have the fatigue factor that comes with an ALS diagnosis patients do state that they often feel better on a day to day basis, but are never quite symptom free. The age of a patient and other underlying conditions may also play a significant role.

]]> By: mak2288 http://www.alsofnevada.org/blog/2009/03/twitching-does-it-really-mean-als/comment-page-1/#comment-23 mak2288 Fri, 17 Apr 2009 00:06:46 +0000 http://www.alsofnevada.org/blog/?p=27#comment-23 Does ALS symptoms come and go. The past 2 days I had symptoms and now that the weather is in the 70's, I don't feel that bad? Does ALS symptoms come and go. The past 2 days I had symptoms and now that the weather is in the 70’s, I don’t feel that bad?

]]> By: admin http://www.alsofnevada.org/blog/2009/03/twitching-does-it-really-mean-als/comment-page-1/#comment-22 admin Thu, 16 Apr 2009 18:15:37 +0000 http://www.alsofnevada.org/blog/?p=27#comment-22 Yes, this is true. Yes, this is true.

]]> By: mak2288 http://www.alsofnevada.org/blog/2009/03/twitching-does-it-really-mean-als/comment-page-1/#comment-21 mak2288 Wed, 15 Apr 2009 22:51:32 +0000 http://www.alsofnevada.org/blog/?p=27#comment-21 Is it more common in males than females Is it more common in males than females

]]> By: admin http://www.alsofnevada.org/blog/2009/03/twitching-does-it-really-mean-als/comment-page-1/#comment-20 admin Wed, 15 Apr 2009 21:55:45 +0000 http://www.alsofnevada.org/blog/?p=27#comment-20 First of all remember stress is one of the leading causes of twitching. Yes, it can be inherited, less than 10% of ALS patients are familial. You can get a referral from you doctor to see a Neurologist. You can also have gene testing done free through Emery University. First of all remember stress is one of the leading causes of twitching.
Yes, it can be inherited, less than 10% of ALS patients are familial. You can get a referral from you doctor to see a Neurologist. You can also have gene testing done free through Emery University.

]]> By: mak2288 http://www.alsofnevada.org/blog/2009/03/twitching-does-it-really-mean-als/comment-page-1/#comment-19 mak2288 Wed, 15 Apr 2009 21:27:31 +0000 http://www.alsofnevada.org/blog/?p=27#comment-19 My Dad was diagnosed with ALS at age 70. He had symptoms for about 5 years. Is this hereditary? I get cramping in my toes and calves all the time. My hands ache and my jaw is starting to hurt. The cramping always start when I am in bed. I have gone to my FP and she doesn't think it's ALS. Your thoughts. My Dad was diagnosed with ALS at age 70. He had symptoms for about 5 years. Is this hereditary? I get cramping in my toes and calves all the time. My hands ache and my jaw is starting to hurt. The cramping always start when I am in bed. I have gone to my FP and she doesn’t think it’s ALS. Your thoughts.

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