[amyotrophic lateral sclerosis]
One symptom everyone on the face of the planet has happen to them is “twitching.” You know that odd little spasm you just cannot explain. Stress and anxiety alone can bring this twitching on; and it can also be an indicator of ALS.
However, we’ve located an outstanding article (full reference below), with 12 things to consider…
Is it or isn’t it ALS?
Here are the key points:
1) ALS is a disease of muscle weakness, not twitching.
2) In almost all cases (doctors don’t like to use the word “always” or “never”) of ALS, the twitching comes AFTER the muscle weakness. Many people who send questions to the medhelp site actually ask how long it takes, in ALS, for the weakness to start kicking in, once the twitching starts. The neurologists can’t answer this, because this is just not how ALS operates. Muscle weakness and sometimes with it wasting, comes FIRST.
3) ALS typically starts in one isolated body part. BFS often starts up in many places at once, though it can start in one body part, but it quickly “spreads.”
4) In BFS, the twitching can often be stopped dead in its tracks (but not always) by moving around. So if your legs are getting hammered by twitching while you are seated, take note if this happens only when your legs are perfectly immobile. Rock your legs to and fro a little and see what happens.
5) The “perceived muscle weakness” in BFS seems to disappear the minute the person begins exercising. Twitching in the absence of muscle weakness is NOT consistent with ALS.
6) One neurologist said that, if after three months of twitching, there is still no muscle weakness, there’s really little chance it could be ALS.
7) ALS is often characterized by the entire tongue twitching, and difficulty swallowing.
8) Tingling is not a symptom of ALS.
9) The hallmark symptom of ALS is muscle weakness characterized by dropping things, difficulty turning keys or typing, stumbling, tripping, a foot dragging, difficulty climbing stairs, exercise intolerance (though some people with BFS report exercise intolerance – this is fear-based). The weakness is not intermittent. Once it’s there, it’s there, and it gets worse.
10) In BFS, the twitching is aggravated by stress or fear, diminished by distraction towards an unrelated topic, and there is no true accompanying muscle weakness (only the “perceived” weakness).
11) In BFS, the EMG test comes out negative.
12) The tip of the tongue can twitch in BFS. In BFS, twitching can occur anywhere: toes, fingers, arches of feet, anywhere on the legs and upper body, by the lip, on the neck, even in the head.
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Reference material obtained from: Twitching Muscle Series: Part 6 – Information that Will Reassure You You’ll Be Just Fine Is your life ruined because you think that your twitching muscles means ALS? Here is the information you absolutely need to know. For the complete article please refer to:
http://www.associatedcontent.comarticle/317264/twitching_muscle_series_part_6_information.html
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April 15th, 2009 at 2:27 pm
My Dad was diagnosed with ALS at age 70. He had symptoms for about 5 years. Is this hereditary? I get cramping in my toes and calves all the time. My hands ache and my jaw is starting to hurt. The cramping always start when I am in bed. I have gone to my FP and she doesn’t think it’s ALS. Your thoughts.
April 15th, 2009 at 2:55 pm
First of all remember stress is one of the leading causes of twitching.
Yes, it can be inherited, less than 10% of ALS patients are familial. You can get a referral from you doctor to see a Neurologist. You can also have gene testing done free through Emery University.
April 15th, 2009 at 3:51 pm
Is it more common in males than females
April 16th, 2009 at 11:15 am
Yes, this is true.
April 16th, 2009 at 5:06 pm
Does ALS symptoms come and go. The past 2 days I had symptoms and now that the weather is in the 70’s, I don’t feel that bad?
April 17th, 2009 at 10:55 am
ALS specific symptoms usually don’t come and go. When you have the fatigue factor that comes with an ALS diagnosis patients do state that they often feel better on a day to day basis, but are never quite symptom free. The age of a patient and other underlying conditions may also play a significant role.
April 21st, 2009 at 7:19 am
I did not know that twitching was a symptom.
September 14th, 2009 at 8:44 am
Thank you very much for this good blog post.
December 5th, 2009 at 6:52 pm
I found your web-site to be very helpfull. I have been experiencing twiching and severe cramps in my calfs for about 8 months. I have seen two nero specialist and two nero surgeons. All say I have spinal stenosis. I cant get the ALS out of my head. I have had emg, head scan back scans and every blood test possible. The twitching is 24/7 and the muscles jump all over the calf at the same time. Ever since this started it was in both legs at the same time. I amd 48 yrs old good family life that I am tearing apart. My friends think im a not beacuse all I think of is ALS. I cant get the symtoms to die down. The docs, look at me like im crazy. I keep thinking I been flagged by the doctors but Im no better. I dont and never had any weakness; just the severe cramping the minute I stand along with the constant twitching. Lost and so afried.
Steve