http://www.alsofnevada.org/blog/2009/02/als-gene-mutation-discovery/ Providing a resource for the voices of ALS caregivers and victims Sun, 02 May 2010 01:45:08 -0500 http://wordpress.org/?v=2.8.4 hourly 1 http://www.alsofnevada.org/blog/2009/02/als-gene-mutation-discovery/comment-page-1/#comment-18 Megan Thu, 12 Mar 2009 02:23:26 +0000 http://www.alsofnevada.org/blog/?p=16#comment-18 Today more than ever public policy is so important. Please call, write or email your state Senators. Last October the President signed into law the ALS Registry Act. Now we have to keep up the hard work, getting it funded. This is the only way we will know how many lives are actually being taken by this horrible disease. Encourage your Senators to push for more funding. It is the only way we will ever get the money need for research and a CURE. Today more than ever public policy is so important. Please call, write or email your state Senators. Last October the President signed into law the ALS Registry Act. Now we have to keep up the hard work, getting it funded. This is the only way we will know how many lives are actually being taken by this horrible disease. Encourage your Senators to push for more funding. It is the only way we will ever get the money need for research and a CURE.

]]> http://www.alsofnevada.org/blog/2009/02/als-gene-mutation-discovery/comment-page-1/#comment-17 admin Wed, 11 Mar 2009 16:24:11 +0000 http://www.alsofnevada.org/blog/?p=16#comment-17 Hello Everyone, I wanted to update you on an upcoming event for ALS of Nevada. Our 2nd Annual Steve Rigazio Memorial Golf Classic will be on April 27 at TPC Summerlin. There are still a few open golf spots and sponsorship opportunities available. Last year this event was sold out, not many golfers get a chance to golf at this outstanding course. Sign up on our website or give the office a call. Have a great day. Hello Everyone,
I wanted to update you on an upcoming event for ALS of Nevada. Our 2nd Annual Steve Rigazio Memorial Golf Classic will be on April 27 at TPC Summerlin. There are still a few open golf spots and sponsorship opportunities available. Last year this event was sold out, not many golfers get a chance to golf at this outstanding course. Sign up on our website or give the office a call. Have a great day.

]]> http://www.alsofnevada.org/blog/2009/02/als-gene-mutation-discovery/comment-page-1/#comment-16 Linda Wed, 04 Mar 2009 05:10:40 +0000 http://www.alsofnevada.org/blog/?p=16#comment-16 Yes! This is great news! I also find it amazing that only 3 people run the organization for the entire state. Super people they are! Yes! This is great news! I also find it amazing that only 3 people run the organization for the entire state. Super people they are!

]]> http://www.alsofnevada.org/blog/2009/02/als-gene-mutation-discovery/comment-page-1/#comment-15 Barbara Wed, 04 Mar 2009 01:05:28 +0000 http://www.alsofnevada.org/blog/?p=16#comment-15 This awful disease deserves all the help and support it can get. Finding a gene mutation is a great place to start.Now on toward a cure...would be a huge blessing! This awful disease deserves all the help and support it can get. Finding a gene mutation is a great place to start.Now on toward a cure…would be a huge blessing!

]]> http://www.alsofnevada.org/blog/2009/02/als-gene-mutation-discovery/comment-page-1/#comment-14 Maureen Tue, 03 Mar 2009 23:19:06 +0000 http://www.alsofnevada.org/blog/?p=16#comment-14 Certainly good to hear about discoveries of breakthroughs. Looks like you have a big project here you are forming- and for a good cause. Certainly good to hear about discoveries of breakthroughs. Looks like you have a big project here you are forming- and for a good cause.

]]> http://www.alsofnevada.org/blog/2009/02/als-gene-mutation-discovery/comment-page-1/#comment-13 Janet Tue, 03 Mar 2009 16:08:26 +0000 http://www.alsofnevada.org/blog/?p=16#comment-13 Thank goodness there are folks like you out there educating us, while others are researching the causes and cures! I have two close friends who have lost a father and the other her spouse to this sad disease. Thank goodness there are folks like you out there educating us, while others are researching the causes and cures! I have two close friends who have lost a father and the other her spouse to this sad disease.

]]> http://www.alsofnevada.org/blog/2009/02/als-gene-mutation-discovery/comment-page-1/#comment-12 Linda Tue, 03 Mar 2009 13:50:09 +0000 http://www.alsofnevada.org/blog/?p=16#comment-12 That is great news! The development of drugs can now be sped up to help with the management and/or cure is just around the corner. That is great news! The development of drugs can now be sped up to help with the management and/or cure is just around the corner.

]]> http://www.alsofnevada.org/blog/2009/02/als-gene-mutation-discovery/comment-page-1/#comment-11 Theresa Tue, 03 Mar 2009 08:15:26 +0000 http://www.alsofnevada.org/blog/?p=16#comment-11 Fantastic they are making breakthroughs! With my mother having gone through the ordeal of this horrible disease, a cure in my lifetime (too late for her) would be so wonderful!! Fantastic they are making breakthroughs! With my mother having gone through the ordeal of this horrible disease, a cure in my lifetime (too late for her) would be so wonderful!!

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