ALS of Nevada

[AlsofNevada Crisis]

We’ve covered on the front page of ALS of Nevada, our serious potential inability to remain an active nonprofit on behalf of Lou Gehrig’s disease victims and their families. We are desperately trying to raise the money needed to just “remain in business”!

To that effect, for those living in Nevada or those planning a trip soon to Las Vegas, we are asking you to support our cause. The wonderful part is you can get two (2) free show tickets to V, The Ultimate Talent Show just by donating and supporting ALS of Nevada.

No one likes to have to beg, especially in these tough times, but begging we are… we must have, truly need, your financial support to remain afloat!

Please find it in your hearts to purchase the tickets or send a donation.

We thank you very much!

Approximately 10% of those affilicted with ALS inherited this devastating disease. While the “family connection” is low, it does exist. Recently ALSA.org announced from their “In The News” section, a clinical trial underway. This clinical trial is aimed at “an inherited, aggressive form of Lou Gehrig’s disease also know as familial amyotrophic lateral sclerosis (ALS).”

Isis Pharmaceuticals, Inc., is in Phase 1 of their study. They are testing an “antisense drug designed to inhibit production of SOD1.” SOD1, or superoxide dismutase, may be the cause of approximately 20 percent of all familial ALS cases. To read the full writeup, please click here.

Also, we understand and fully appreciate these harsh economic times. However, your donation directly to ALS of Nevada will help us assist the victims and caregivers within our own state. All monies stay here in our state to help Nevada ALS victims.

ALS of Nevada is not affiliated with ALSA. We are a not-for-profit group covering a very large state. Donations of any amount are always appreciated!

[alsreliefmucus]

First, thanks for being so patient when it comes to updating a new post for the blog. We were extremely busy moving to the new Lou Ruvo Brain Center, as well as planning for all our upcoming 2010 fundraising events.

However, we would like to bring to your attention a website that is going to help many. Healthier Lungs is a must visit for all caregivers assisting victims of ALS!

Their section, NAC Shows Benefit in ALS Studies is supported with medical documentation and the reason for us posting it here.

In our sessions with caregivers and ALS victims, the above referenced web site was brought to our attention. Again, we feel you will find valuable information. Both links open in new windows, so you can just close them when you are done and leave us any comments, questions, or concerns.

Remember, if you live in Nevada, we’re just a phone call away! See the sidebar for details.

[alsofnevada-events]

For those of you unaware of the fact that there is an entire ALS information website “out front,” we didn’t want you to miss out on the newest fund raising events planned for the new Year!

You’ll want to head to our Calender of Events, but here’s just “taste” of things to come. Whether you live in Nevada or are planning a trip, do see what we have scheduled. Your attendance and support means the world to us, our patients, and our caregivers. And, you get to support a worthwhile cause (1 in 10 families are impacted) AND have a great time:

Get Involved Support ALS!

Stop by the website and see what we’re all about – we are hear to help! Even if you do not live in Nevada, we can assist you to find the best resources for you and your family!