Jan 7

[alsofnevada-events]

For those of you unaware of the fact that there is an entire ALS information website “out front,” we didn’t want you to miss out on the newest fund raising events planned for the new Year!

You’ll want to head to our Calender of Events, but here’s just “taste” of things to come. Whether you live in Nevada or are planning a trip, do see what we have scheduled. Your attendance and support means the world to us, our patients, and our caregivers. And, you get to support a worthwhile cause (1 in 10 families are impacted) AND have a great time:

Get Involved Support ALS!

Get Involved Support ALS!

Stop by the website and see what we’re all about – we are hear to help! Even if you do not live in Nevada, we can assist you to find the best resources for you and your family!

Dec 11

[grants/donations/als]

Our apologies for not posting as often as we would have liked this past year, but the move to the new Center (see post below this one), and keeping in touch with patients and caregivers, and the clinic and fund raising consume lots of our time.

BUT… and this should have been announced last month, we have wonderful news!

We received the news that ALS of Nevada will be receiving a $25,000 grant from Wal-Mart that we applied for in August. This grant is restricted to our clinics and the buying and repairs of equipment for our patients statewide.

So with the new move complete, wonderful donations coming in through individuals, families, small and large businesses, we’re ready to hit 2010 with everything we’ve got!

We’d prefer, actually, to go out of business! Finding a cure is the miracle we all pray for! This Season, please don’t forget about us here in Nevada. You’ll find our donation information off there to your right.

Happy Holidays to All!

Oct 16

[louruvobraincenter]

We have begun our new move to the brand spanking new Lou Ruvo Center on Bonneville in Las Vegas. While we’re not 100% up and running, the move is going smoothly. It’s just we have a lot of equipment, files, etc., to get sorted.

In our old offices (and we do mean “old”) there was a bit of space. Cubicles now make up our wonderful space in this fantastic facility.

Here’s a photo of what the building looked like in September 2009. As soon as we’re able, we’ll update everyone on it’s current look (if you haven’t already traveled by to take a look for yourself).

Lou Ruvo Brain Institute Las Vegas Sept 2009

Lou Ruvo Brain Institute Las Vegas Sept 2009

Sep 15

[ketoneburning why fattening up is so important with ALS]

The folks over at ALS were kind enough to let me do a personal post of my own. My mother passed from ALS and the one thing that I wish, besides having her back, would have been to have thought ahead of time about the amount of fat she actually lacked when she was diagnosed. You see my mother was always “watching her weight.” Normally, this is a very good thing, but when ALS strikes being fatter is healthier!

While she could still swallow (eat normally), she should have been eating ice cream, cookies, any and all fat-inducing foods by the handfuls (and we should have made her!!).

The reason is very simple. This horrible disease is going to attack every part of a person’s body. It goes for all the fat reserves first, and then… well there are only muscles and organs left.

The more obese even a person is – while they are able to pack the weight on – the better when it comes to “fighting” ALS!

Having been on fat-burning diets in the past, I KNOW the smell of ketones (fat) burning. It gives off a distinct odor. And as her ALS progressed, the smell was overwhelming. However, by that time it was too late. She had too much trouble swallowing, had no appetite at all, and just couldn’t do it. She just did not have the energy or ability to do the one thing she needed desperately to do… eat!

So PLEASE if you have a loved one diagnosed with ALS (Lou Gehrigh’s disease) and while they are able, MAKE THEM eat, and eat, and eat. The more fat they have stored to burn the better!

This is a horrible disease, and too often we – the caregivers – feel alone, exhausted and totally helpless. Those with ALS, my heart goes out to you. PLEASE follow this advice – eat while you can – fattening rich chocolate brownies with mounts of ice cream, whip cream and nuts. Whatever you can… just EAT. Stop thinking “healthy” and start thinking “I need to pack on the pounds!”

Thanks for reading ( in loving memory to my mother, Maureen Grone).

* * * * * * * * * * *
Thanks again to the folks at ALS of Nevada for letting me post. If YOU have words of wisdom, encouragement, strategies, whatever, feel absolutely free to send your write ups in using the “Have a Question?” contact link on your right. We will happily post your information!

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