ALS of Nevada - ALS of Nevada staff who we are and how we can help

About Us

ALS of Nevada is an independent not-for-profit organization serving ALS patients from throughout Nevada.We support, encourage, hold hands, pray, offer guidance, answers and whatever else it takes to see a person who has ALS, and his/her family through the various experiences of living with it.

We supply patient aid devices for the varying stages of ALS

We can help you find people who've been through ALS to share with

We offer in-home visits and counseling with family members

We coordinate support group meetings in Northern and Southern Nevada

We actively raise funds in your community to continue our non-profit services.

Amyotrophic lateral sclerosis, commonly known as "Lou Gehrig's Disease," is a progressive and fatal neuromuscular disorder that attacks certain nerve cells and pathways in the brain and spinal cord. With all voluntary muscle action affected, patients in the later stages are totally paralyzed, unable to speak, swallow or breathe. Yet, through it all, their minds remain unaffected. First identified in 1869, the cause and cure of ALS are as yet unknown.

300,000 Americans alive and well today will die as a result of ALS unless a cure is found. Three people are diagnosed with ALS every five (5) hours. Every 90 minutes a person loses his battle with ALS.

Sometimes it is difficult to even find a doctor who is willing or qualified to offer the diagnosis of ALS. Early signs of the disease can be mistaken for other illnesses, and symptoms. Often, people searching for a diagnosis are encouraged to get an opinion from more than one physician.

Our Hope

To help the ALS patient and family to live as full and as normal a life as possible
To aid patients through the loan of equipment or by other means
To serve as a liaison, linking the ALS patient and family to available resources and information
To educate and inform the general public as to the nature of ALS
To encourage and support research for the prevention, alleviation, care, treatment and cure of ALS
To increase awareness of ALS in all levels of government in an effort to expand government support of research and elicit programs to make treatments and care accessible and affordable for all ALS patients.

Officers
Lauran Meyer, President
Larry Bender, Vice President
Sharon Milano, Secretary
Anne Marschik, Treasurer

Board Members
Richann Bender
Larry Brown
Heath Hairr
Robert Lillis
David Saxe
Bruce Rector
Kathy Rector

Advisory Members
Chris Barrett
Martin Barrett
Vince Barrett
Andrew Cox
John Dawson
Don Logan
Senator William Raggio
George Smith
Wendy Waite

Staff
Megan Testa, LPN Executive Director
Susie Davis, LPN Director of Patient Services
Kim Stark-Caspar, MSW