Overview

ALS of Nevada is an independent non-profit 501(c)(3) organization. We provide much-needed services for ALS patients, their caregivers and their families throughout Nevada. To listen to a recent interview with ALS of Nevada staff, patient and caregiver and Dr. Ginsburg, please click here.

We depend on the generosity of individuals, businesses and corporations who provide us with tax-deductible contributions so that we may fulfill our mission and meet the needs of the Nevada ALS patients that we serve.

  • We provide patients with aids for daily living, during each phase of ALS;
  • We can help you find people who’ve been through ALS to offer their advice and share experiences;
  • We offer in-home visits by licensed personnel;
  • We coordinate support group meetings in Northern Nevada;
  • We actively raise funds in your community to continue our non-profit services.

Our Hope

  • To help the ALS patient and family to live as full and as normal a life as possible.
  • To aid patients through the loan of equipment or by other means.
  • To serve as a liaison, linking the ALS patient and family to available resources and information.
  • To educate and inform the general public as to the nature of ALS.
  • To encourage and support research for the prevention, alleviation, care, treatment and cure of ALS.
  • To increase awareness of ALS in all levels of government in an effort to expand government support of research and elicit programs to make treatments and care accessible and affordable for all ALS patients.

Yearly Update letter from Larry Bender, Board President

ALS of Nevada’s 2010 fiscal year ended on June 30, 2011 and I felt it was important to provide you with an update of our current condition, which has undergone dramatic improvement since last year.

Lack of State Funding

Since 2008, the dismal economic conditions in Nevada have affected all businesses and families and our organization was no different. As many of you know, last year was particularly challenging due to the State’s declining revenue and resulting budget problems. These budget problems caused the State to eliminate most of the funds they had been granting to many non-profit organizations over the previous several years. In our case, the State eliminated $130,000 we had been receiving regularly. This decrease in revenue forced us to eliminate our respite program, which was paid for by these funds.

Continue Reading…

WE STILL NEED YOUR HELP.

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THE ALS OF NEVADA TEAM

Board of Directors

Officers

  • President, Larry Bender
  • Vice President, Durette Candito, Urban Ranch General Store
  • Vice President, Robert Lillis
  • Secretary, Lauran Meyer
  • Treasurer, Anne Marschik, Northern Trust

Directors

  • Larry Brown, Clark County Commissioner
  • Richann Bender
  • Heath Hairr, RT, Western Home Care
  • Nitsa Gianakoulias
  • Sharon Milano
  • Bruce Rector, MuniMetriX, Reno Nevada
  • Kathy Rector, MuniMetriX, Reno Nevada
  • David Saxe, Saxe Productions
  • Bret Tracy, Quantum Rehab/Pride Mobility

Advisory Members

  • Chris Barrett
  • Martin Barrett
  • Vince Barrett
  • Andrew Cox, Esq.
  • John Dawson, Esq.
  • Howard B. Levy, CPA
  • Don Logan
  • George Smith
  • Wendy Waite

Staff

  • Megan Testa, LPN Executive Director