ALS of Nevada Monthly Multi-Disciplinary Clinics
Free clinics are held in Reno and Las Vegas with a neurologist, respiratory therapist, occupational therapist, speech language pathologist, dietitian, social worker, and a representative from ALS of Nevada at the clinic. All Nevada patients are eligible to attend and are scheduled every 3-6 months depending on their rate of progression.
ALS of Nevada has arranged with local emergency response teams to incorporate pertinent information to appear on their dispatch screens should you dial 911 from your home. Registration forms available in our office. This information includes such items as:
- I am unable to speak
- I am on a respirator
- I am on a G-tube
- I have executed a DNR order
- A loan closet of technological devices that allow the patient to communicate when the ability of speech has been lost.
Equipment Loan Closet
- Contains items such as power and manual wheelchairs, shower chairs, rolling shower chairs, transfer boards, bedside commodes, 4-wheel walkers, canes, etc. available for loan.
ADL Program (Aids for Daily Living)
- A loan closet of ergonomic aids (built-up gripped eating utensils; scoop plates, hand braces, neck braces, etc.) to assist patients in compensating for the loss of basic functions.
- Locally produced information piece published on a “when we can” basis. Volunteers appreciated!
- Staff, a licensed nurse, meets with family to discuss the life-style changes created by ALS and offers suggestions for home adaptations. Also staff will offer advice with Medicare and Social Security paperwork, insurance information, and guidance throughout the disease.
- Includes books on caregiving and an assortment of books specifically for children dealing with loss and grief.
Support Group Meeting
- ALS Staff facilitate the Reno Support Group held the first Thursday of each month. Meetings are open to patients, caregivers and family members. Unfortunately, due to lack of funds, there is no support group in Las Vegas at the present time.
- Custodial care, home bathing, or general respite services. Program is available due to grant funding. (Funds are limited) Must be Nevada resident and show demonstrated need.
Share the Care
- Training provided to your own group of friends, neighbors and relatives to help you create a “caregiver family” so that every job will be done and no one person will have to do too much.
- Training provided to home health agencies and medical professionals on the disease of ALS and care management.